Logo of What's our story? | www.acrodysostosis.com

What's our story? | www.acrodysostosis.com

acrodysostosis.com is a website to support patients and families affected by Acrodysostosis. we aim to support, promote research, discover treatments. we have a patient registry which we will use to promote research and we are working with 7 clinicians and researchers to achieve this.

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