Ciliopathyalliance
We want to improve the lives of children and adults affected by ciliopathies - syndromes, diseases or conditions caused by dysfunctional or defective cilia.
About Us
Contact Information
Conditions We Support
Ciliopathy
- Alström Syndrome
- Bardet-Biedl Syndrome
- Jeune Asphyxiating Thoracic Dysplasia (JATD)
- Joubert Syndrome
- Nephronophthisis
- Polycystic Kidney Disease (PKD)
- Primary Ciliary Dyskinesia
If you've been diagnosed with any of these conditions, we're here to help.
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