Advocacy for Neuroacanthocytosis Patients

NA Advocacy is a patient-focused organization dedicated to supporting individuals affected by neuroacanthocytosis (NA). The organization engages in advocacy, patient support, research promotion, and community building. It publishes newsletters, organizes events, and provides educational resources for patients and their families. NA Advocacy collaborates with research institutions, healthcare providers, and other advocacy groups to advance understanding and treatment of NA. The organization operates primarily in the UK, with a global outreach through online platforms and multilingual publications. It maintains a website, email contact, and social media presence to connect with the community and stakeholders.