VHL UK Ireland
To relieve the charitable needs of persons who have von Hippel-Lindau Syndrome (VHL) and similar genetic conditions such as Hereditary Leiomyomatosis and Renal Cell Cancer (HLRCC) and Birt-Hogg- Dubé Syndrome (BHD) and their families and carers in the UK and Ireland for the public benefit in particular but not exclusively by:
- Providing support and advice regarding their genetic conditions
- Providing funds for research into the genetic conditions and for equipment to assist with such research
- To advance the education of the public in all matters concerning the genetic conditions
Please note the charity is unable to give grants or loans to individuals to help their financial needs. We advise contacting a larger organisation
About Us
Contact Information
- Phone:
- Email:
- Website: https://vhl-uk-ireland.org/
Our Location
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Have you been diagnosed with one of these conditions?
- Other Rare Disease
- Genetic Disorders
If you have been diagnosed with any of the above, get in touch with us.
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