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UK Masto

We are a registered charity supporting people with mast cell diseases and their families. The group was founded in 2004 by Irene Wilson and became a registered charity in 2013. Support We support patients and parents of patients through our private web forums, by holding patient conferences and occasional regional meet-ups, and by providing one-on-one support when needed. Over the past fifteen years, hundreds of patients have supported each other and shared their experiences through our email group (soon to be superseded by our GDPR-compliant web forum). We help patients (and parents) learn to understand the conditions and help them to advocate for their needs in healthcare, in employment and in school. We provide educational materials for patients, families and their communities.

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    • Other Rare Disease

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