The Schinzel-Giedion Syndrome Foundation
The Schinzel-Giedion Syndrome Foundation is a registered UK charity established in 2019 by an international group of parents of children with Schinzel-Giedion Syndrome (SGS). Our foundation has been created to represent children with SGS and their families living all around the world.
Our Mission
Our mission is to provide support to families caring for a child with Schinzel-Giedion Syndrome, to raise awareness of SGS and to facilitate and support medical research that will help us find better treatments to improve the quality and length of life of children living with SGS.
About Us
Contact Information
Conditions We Support
Genetic Disorders
- Other Rare Genetic Disorders
Other Rare Diseases
Mental Health
Neurological
Neurological Disorders
Supportive Care
Other Rare Conditions
- Rare Disease Awareness
Seizures
- Epileptic Seizures
Schinzel-Giedion Syndrome
- Classical Schinzel-Giedion Syndrome
- Atypical Schinzel-Giedion Syndrome
Neurodevelopmental Disorders
Kidney Disorders
If you've been diagnosed with any of these conditions, we're here to help.
Link to this page
