Prader-Willi-Syndrom Vereinigung Deutschland e.V.

The Prader-Willi-Syndrom Vereinigung Deutschland e.V. is a patient organization dedicated to supporting individuals with Prader-Willi Syndrome and their families. They provide resources, information, and support services related to the condition, including therapies, health management, and social integration. The organization engages in advocacy, awareness campaigns, and offers educational resources for patients, families, and healthcare professionals. They maintain a website with extensive information on causes, symptoms, treatment options, and patient stories. They also organize events such as awareness runs and fundraising activities to support research and patient support programs.