Rare & Undiagnosed Network

The Rare & Undiagnosed Network (RUN) is a collaborative community of advocates, patients, families, researchers, healthcare providers, and organizations dedicated to improving the lives of individuals with rare and undiagnosed conditions. RUN aims to bring genome sequencing into clinical practice, facilitate diagnosis, support research, and provide resources and advocacy for affected individuals and their families. The network promotes awareness, education, and collaboration to accelerate discovery and improve patient outcomes. RUN also engages in policy advocacy, supports research initiatives, and maintains a directory of resources, including patient registries, clinical trials, and educational materials. The organization is committed to transparency, community engagement, and advancing genomic medicine to help those living with rare and undiagnosed diseases.