Prader-Willi Syndrome Association UK

The Prader-Willi Syndrome Association UK (PWSA UK) is a charity dedicated to supporting individuals with Prader-Willi syndrome and their families. It provides information, support, advocacy, and organizes community events and campaigns to raise awareness and improve quality of life for those affected by PWS. The organization also engages in research collaborations, offers educational resources, and maintains a network of volunteers and professionals committed to the cause. PWSA UK is involved in policy advocacy, clinical research, and provides various support services including support groups, educational programs, and fundraising activities. It is registered as a charity in the UK with the registration numbers England and Wales: 1155846 and Scotland: SC053700. The Prader-Willi Syndrome Association UK (PWSA UK) is a patient advocacy organization dedicated to supporting individuals with Prader-Willi Syndrome and their families. It provides education, support services, advocacy, and resources to improve quality of life. The organization offers guidance on medical management, educational support, and social inclusion. It engages in research advocacy, collaborates with healthcare professionals, and promotes best practices for care. PWSA UK also runs campaigns, provides educational materials, and facilitates community support networks. Its activities include helping with educational planning, health management, and legal rights, as well as offering training and resources for education settings and families. The organization is involved in policy guidance, clinical guidelines, and research dissemination related to PWS.