Suomen PWS-yhdistys ry

Suomen PWS-yhdistys ry is a Finnish national patient advocacy group for Prader-Willi syndrome (PWS). Its purpose is to be a meeting place for individuals with PWS, their families and guardians; to support families of children with PWS and provide peer support when needed; and to organize leisure and camp activities for people with PWS and their families, such as gatherings and a PWS-specific summer/welfare camp. The organization is a member of the International Prader-Willi Syndrome Organisation (IPWSO) and belongs to Kehityvammaisten Tukiliitto ry, which maintains its membership registry. It references an international information base on PWS and provides resources such as PWS-related guides and privacy notices. The organization operates within Finland and is connected to broader networks via IPWSO and Tukiliitto.