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Prader-Willi Vlaanderen

Prader-Willi Vlaanderen vzw is a non-profit organization based in Knokke-Heist, Belgium, dedicated to supporting individuals with Prader-Willi Syndrome and their families. The organization provides information, advocacy, support groups, educational resources, and medical guidance. It aims to improve the quality of life for those affected by PWS through community engagement, medical expertise, and research support. The organization collaborates with healthcare professionals, researchers, and other advocacy groups to promote awareness, early diagnosis, and comprehensive care for individuals with Prader-Willi Syndrome. Prader-Willi Vlaanderen is a non-profit organization dedicated to supporting individuals with Prader-Willi syndrome and their families. The organization provides information, advocacy, and support services, including medical guidance, educational resources, and community activities. It aims to improve the quality of life for those affected by Prader-Willi syndrome through awareness campaigns, research support, and collaboration with healthcare professionals. The organization also offers guidance on diagnosis, development, nutrition, behavior, and medical care, and organizes events such as reunions and informational sessions. It maintains a website with resources, news, and contact information, and is active on social media platforms like Facebook.
Conditions We Support

Other Rare Disease

    Genetic Disorders

    • Prader-Willi Syndrome (PWS)

    If you've been diagnosed with any of these conditions, we're here to help.

    Link to this page

    Link to this page on PatientGroups.ai