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Pompe Support Network

Based in the United Kingdom, we are a network of individuals, families, scientists, and healthcare professionals who aim to improve the lives of all people living and working with Pompe disease. The network is run by members of the Pompe community, for the benefit of the Pompe community.

About Us

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    © 2024 Pompe Support Network. All rights reserved.

    Have you been diagnosed with one of these conditions?

    • Other Rare Disease

      If you have been diagnosed with any of the above, get in touch with us.






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