Pompe Support Network
Based in the United Kingdom, we are a network of individuals, families, scientists, and healthcare professionals who aim to improve the lives of all people living and working with Pompe disease.
About Us
Contact Information
2019
Many people receive the plethora of global news items through Google Alerts, Facebook and other Pompe websites, for example
Conditions We Support
Cardiovascular
Genetic Disorders
- Other Rare Genetic Disorders
Musculoskeletal Disorders
- Polymyositis/Idiopathic Inflammatory Myopathy
Rare
- Pompe Disease (Glycogen Storage Disease Type II)
Glycogen Storage Diseases
Pompe Disease
If you've been diagnosed with any of these conditions, we're here to help.
Link to this page
