PIP-UK

PIP-UK is a UK-registered charity focused on Poland Syndrome. The organization aims to improve the lives of people affected by Poland Syndrome by raising awareness, providing educational resources, building a patient community, and supporting research through the Poland Syndrome Community Register. PIP-UK offers information about Poland Syndrome, promotes patient experiences and advocacy, and hosts events, ambassadors, and safeguarding practices. It seeks to be a centre of excellence for Poland Syndrome in the UK and globally, facilitating access to resources such as the Poland Syndrome Clinic, Start Here: Poland Syndrome + You, What is Poland Syndrome?, awareness campaigns, and fundraising initiatives to support individuals and families.