Myotubular Trust
We help the ‘here and now’ empowering patients and their families with latest best practice and shared patient experiences to discuss with their doctors...
Myotubular Trust, research and funding for centronuclear myopathy as well as supporting families experiencing this life ... contact@myotubulartrust.org
About Us
Contact Information
Conditions We Support
Myotubular Myopathy
- X-Linked Myotubular Myopathy (XLMTM)
Centronuclear Myopathy
If you've been diagnosed with any of these conditions, we're here to help.
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