Myotubular Trust
We help the ‘here and now’ empowering patients and their families with latest best practice and shared patient experiences to discuss with their doctors...
Myotubular Trust, research and funding for centronuclear myopathy as well as supporting families experiencing this life ... contact@myotubulartrust.org
About Us
Contact Information
- Phone: 020 8641 6427
- Email: contact@myotubulartrust.org
- Website: https://myotubulartrust.org/
Our Location
15A BARNARD ROAD LONDON SW11 1QTSocial Media
- Twitter/X: @https://twitter.com/myotubulartrust
- Facebook: https://facebook.com/159731204379850
Have you been diagnosed with one of these conditions?
- Other Rare Disease
If you have been diagnosed with any of the above, get in touch with us.
Or email Myotubular Trust
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