MVA Society

Dedicated to understanding and supporting those affected by Mosaic Variegated Aneuploidy (MVA) syndrome The MVA Society has been set up as a patient advocacy site to establish a focal point for the ultra-rare genetic condition Mosaic Variegated Aneuploidy syndrome. We believe this is the first (and only!) dedicated organisation and site for MVA. The aims of the MVA Society are 3 fold: Act as a patient advocacy support and information resource Build a community of practise and patient cohort Investigate research into screening, surveillance and treatment of MVA