
MPN Education Foundation
The MPN Education Foundation is dedicated to providing education and support for patients with myeloproliferative neoplasms (MPNs) and their families. We aim to improve the quality of life for patients through education, advocacy, and support services. The foundation promotes collaboration in the scientific community to accelerate research and serves as a powerful advocacy group for patients and families. MPN-NET is the global online support and education list for patients, families, researchers, and physicians. They offer resources, support groups, and information about clinical trials and treatment options. The foundation invites you to attend in-person patient-doctor conferences, bringing together medical experts with MPN patients and their caregivers to learn more about the issues faced by those diagnosed with these disorders. The foundation is involved in promoting awareness and participation in clinical trials related to MPNs. The Foundation facilitates patient participation in clinical studies and surveys, including studies that have led to the identification of the JAK2 mutation expressed by many MPN patients. Joyce Niblack was involved in clinical trials for interferon therapy for Myeloproliferative Neoplasm Disorders. Involvement in clinical trials related to MPNs is supported through various affiliated organizations. The MPN-RC has launched a new website showcasing innovative laboratory and clinical research to cure MPNs. Involved in clinical trials related to MPNs and their treatments. Encourages sharing of information regarding clinical trials and treatment possibilities. The conference covers topics related to drug trials and treatments for MPNs.
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