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MPN Voice

MPN Voice is a registered charity focused on supporting individuals with myeloproliferative neoplasms (MPNs). Their activities include providing information, raising awareness, supporting patients through various programs, conducting research, and advocating for the MPN community. They offer educational resources, patient support services, and organize events and forums. They also engage in clinical research and trials, provide patient stories and testimonials, and maintain a strong online presence through their website and social media channels. As a charity, they are under the auspices of Guy's and St Thomas' Foundation, with registered charity number 1160316. MPN Voice is a registered charity under the auspices of Guy's and St Thomas' Foundation. It supports patients with myeloproliferative neoplasms (MPNs) through advocacy, education, support groups, research, and awareness campaigns. The organization provides patient education resources, hosts forums and events, and collaborates with healthcare professionals and research institutions. MPN Voice also engages in policy advocacy, clinical trial support, and fundraising activities to improve patient outcomes and quality of life. It maintains a website with extensive information on MPNs, treatments, and living with the condition, and actively promotes community engagement and patient empowerment.
About Us

Our Mission

To support and empower individuals affected by myeloproliferative neoplasms through education, advocacy, research, and community engagement, improving quality of life and treatment outcomes.

Our Values

Patient-centered care, empowerment, collaboration, research, transparency, inclusivity.

Contact Information
Guy’s and St Thomas’ Foundation, London, UK
Conditions We Support

Hematological Disorders

  • Acquired Hemophilia
  • Essential Thrombocythemia (ET)

Myeloproliferative Neoplasms (MPNs)

  • Myelofibrosis (MF)

If you've been diagnosed with any of these conditions, we're here to help.

Link to this page

Link to this page on PatientGroups.ai