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Lightning and Love Foundation

To raise awareness, advance scientific research through fundraising and advocacy, and find a cure for diseases caused from mutations in the THAP12 gene ultimately transforming the lives of those affected; and in turn helping change the landscape and providing knowledge and hope for all people living with ultra-rare diseases.

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    © 2024 Lightning and Love Foundation. All rights reserved.

    Have you been diagnosed with one of these conditions?

    • Other Rare Disease
      • Central Nervous System
        • Lennox-Gastaut Syndrome

      If you have been diagnosed with any of the above, get in touch with us.

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