Lightning and Love Foundation
To raise awareness, advance scientific research through fundraising and advocacy, and find a cure for diseases caused from mutations in the THAP12 gene ultimately transforming the lives of those affected; and in turn helping change the landscape and providing knowledge and hope for all people living with ultra-rare diseases.
About Us
Contact Information
Conditions We Support
Other Rare Disease
Central Nervous System
- Seizures
- Severe Hypotonia
If you've been diagnosed with any of these conditions, we're here to help.
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