LGMD2E

it is a group of families with people suffering from beta-sarcoglycanopathy and other Limb Girdle Muscular dystrophy, rare forms of muscular dystrophy. The group was created by some families residing in Lombardy. Then it was extended to people residing in Italy and abroad. GFB ONLUS is born to finance research projects aimed at find a therapy to those diseases. He wants to respond to the lack of information and research activities specific to this particular pathology. The mission is to represent people affected by Beta-sarcoglycanopathy, in front of institutions, research institutions, other associations, patients. For now, there are no other groups with this purpose, neither in Italy nor abroad so GFB Onlus carries this important battle all alone.