Kids v Cancer

Kids v Cancer was founded in memory of Nancy’s and Michael's son, Jacob Froman, who was diagnosed with medulloblastoma, a rare form of brain cancer. The organization aims to advocate for better treatment options and support for children with cancer. They focus on legislative initiatives to enhance drug development for pediatric cancer. Changing the landscape of pediatric cancer drug development. Kids v Cancer advocates for the development of pediatric drugs and policies that ensure children have access to safe and effective treatments for cancer and other rare diseases. The Creating Hope Act provides an incentive for rare pediatric disease drug development. Pursuant to the Creating Hope Act, a company that receives FDA approval for a drug for pediatric cancer or another life threatening pediatric illness also receives from the FDA a pediatric voucher. The voucher comes with rights to faster FDA review of any future drug for any other disease, enabling the voucher holder to receive an FDA “priority review” instead of a “standard review.” The voucher is also transferable. Kids v Cancer advocates for the Give Kids a Chance Act, which aims to ensure that combinations of cancer medicines used to treat children with cancer are studied in children with cancer. The organization focuses on improving treatment options for pediatric cancer patients by promoting legislative changes that allow for more comprehensive research into combination therapies. Help Find a Cure – Donate Your Child’s Autopsy Tissue. A child’s end of life is a tragedy, but by donating your child’s autopsy tissue, you can contribute to childhood brain cancer research and help find better treatments for other children. Autopsy tissue is an invaluable resource that can come only from us, parents whose children have terminal brain cancer.