Logo of International Prader-Willi Syndrome Organisation

International Prader-Willi Syndrome Organisation

Since 1991 IPWSO has supported national PWS associations, as well as people with PWS, their families and the professionals who work with them. Our vision is a world where people with PWS and their families receive the services and support they need to fulfil their potential and achieve their goals. We are working to achieve this goal by uniting the global PWS community to collectively find solutions to the challenges of the syndrome and to support and advocate for people with PWS and their families, PWS associations, and professionals who work with people with PWS.

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    © 2024 International Prader-Willi Syndrome Organisation. All rights reserved.

    Have you been diagnosed with one of these conditions?

    • Other Rare Disease
      • Genetic Disorders
        • Prader-Willi Syndrome (PWS)

      If you have been diagnosed with any of the above, get in touch with us.






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