International Kidney Cancer Coalition (IKCC)

IKCC is the only global patient-driven organisation focused on kidney cancer. Initiated in 2009 and incorporated in 2014, we are a global network of Partner Organisations working together to reduce the burden of kidney cancer locally and globally through collaboration, sharing and learning from each other. Together we are improving research, treatment, care and survivorship through evidence-based education, awareness and advocacy programs that respond to the needs of people affected by kidney cancer. The IKCC Medical Advisory Board is made up of clinical experts from around the globe. They provide scientific and clinical expertise to IKCC and support its commitment to evidence-based leadership and activities. A guiding principle of the Medical Advisory Board is that engaging with patients and empowering them with quality information leads to better health outcomes. This is done through education, information dissemination and advocacy aimed at including patient perspective and values in all aspects of care, research and guideline development. The IKCC InfoHub is a resource of shareable information, graphics and materials about kidney cancer for patient organisations worldwide. IKCC is a proud partner of the DISCERN Project – Discovering the Causes of Three Poorly Understood Cancers in Europe. It is a five-year project of the European Commission Cancer Mission to understand the causes of renal (kidney), pancreatic, and colorectal cancer in Europe and to help explain the geographical distribution of these cancer types, including their high incidence in central and eastern Europe.