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Hope for Hasti

Hope for Hasti is a parent led charity, directed by Chris Brannigan, Hasti’s Dad, and Hengameh Delfaninejad, Hasti’s mum. Hasti is just 10 years old and she dreams of being a chef and a dancer. Hasti however has a rare genetic disease, Cornelia de Lange Syndrome (CdLS). Hasti’s Mum and Dad decided to start the charity in January 2020 with view to funding the research and development of a gene therapy for CdLS.
Conditions We Support

Genetic Disorders

    Other Rare Disease

    • Cornelia de Lange Syndrome

    If you've been diagnosed with any of these conditions, we're here to help.

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