
Hope for Hasti
Hope for Hasti is a parent led charity, directed by Chris Brannigan, Hasti’s Dad, and Hengameh Delfaninejad, Hasti’s mum. Hasti is just 10 years old and she dreams of being a chef and a dancer. Hasti however has a rare genetic disease, Cornelia de Lange Syndrome (CdLS). Hasti’s Mum and Dad decided to start the charity in January 2020 with view to funding the research and development of a gene therapy for CdLS.
About Us
Contact Information
Conditions We Support
Genetic Disorders
Other Rare Disease
- Cornelia de Lange Syndrome
If you've been diagnosed with any of these conditions, we're here to help.
Link to this page
