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FSHD Europe

FSHD Europe unites and amplifies the voice of FSHD patients across Europe, raising awareness and interest among all stakeholders, including researchers, clinicians, pharmaceutical companies, regulators, payors, and national patient organizations.
About Us

Our Mission

To improve the quality of life for all patients and their families, and facilitate the easy diagnosis of FSHD, and enable all patients have access to the best treatment. FSHD Europe unites and amplifies the voice of FSHD patients across Europe, raising awareness and interest among all stakeholders, including researchers, clinicians, pharmaceutical companies, regulators, payors, and national patient organizations.

Conditions We Support

Genetic Disorders

  • FSHD Type 1
  • FSHD Type 2

Muscular Dystrophy

  • Facioscapulohumeral Muscular Dystrophy (FSHD)

If you've been diagnosed with any of these conditions, we're here to help.

Link to this page

Link to this page on PatientGroups.ai