Federation Bulgarian Patients Forum

Federation “Bulgarian Patient Forum” is a non-governmental organization whose goal is to protect the rights of people with various diseases, their timely access to quality treatment and appropriate therapy for their condition. The Federation “Bulgarian Patient Forum” has regional representatives in the 28 districts of Bulgaria, ready to help patients with everything related to their health (problems). With our member organization “Cardiology and familial hypercholesterolemia Bulgaria”, we have been working for the improvement of the situation of people with familial hypercholesterolemia for years. Our activities focus on two specific areas, improvement of disease awareness and collaboration with various national and international institutions. Every year, at Federation Bulgarian Patients Forum, we organize patient meetings in order to improve the health literacy of patients and lay public. At our events, we explain to the participants what FH is, its symptoms, risks and disease consequences as well as available treatment options. For the last 3 years, we have toured the country with events, where we educated about and tested Bulgarians for high LDL cholesterol. Our priority is to have FH recognized as a significant public health burden and to obtain reimbursement for FH medications and treatments.