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Eyes on the Future

We are a community who care for people affected by Inherited Retinal Dystrophies (IRDs), specifically those affected by RDH12 IRD. We are RDH12 patients, carers, families and friends, united in our drive to find a treatment. What we do We are the catalyst of focused efforts to find a cure for the condition. We deliver tangible progress towards its resolution. We bring together patients, scientists, industries and stakeholders. We accelerate research. Why we exist We want to help people to see for longer. Currently there is a gap between science – which has made a lot of progress into treating similar conditions – and what is available for our condition. We exist to fill this gap and to create awareness that it can be filled.
About Us
Conditions We Support

Genetic Disorders

  • Amaurosis Leber

Ophthalmology

  • Other Rare Ophthalmological Conditions

Other Rare Diseases

    If you've been diagnosed with any of these conditions, we're here to help.

    Link to this page

    Link to this page on PatientGroups.ai