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We advocate for patient support, public awareness, and government funding. We offer support and information for people with EHE no matter where they live. We fund critical research into EHE to develop and deliver new treatments and drug regimens.

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    Have you been diagnosed with one of these conditions?

    • Other Rare Disease
      • Oncology

        If you have been diagnosed with any of the above, get in touch with us.
        Or email EHE

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