Dravet Syndrome UK
Dravet Syndrome UK is a patient support organization dedicated to providing information, emotional support, and resources for families affected by Dravet Syndrome. They offer practical and emotional support, mental health support, resources and advice, financial grants, and support for families overseas. The organization also engages in research, advocacy, and professional collaboration to improve care and awareness of Dravet Syndrome. They maintain a website with extensive resources, including guides, leaflets, and information for healthcare professionals and families. The charity is based in Chesterfield, UK, with a charity number 1128289, and has a presence on social media platforms such as Twitter, Facebook, Instagram, LinkedIn, and YouTube.
About Us
Our Mission
Dedicated to improving the lives of those affected by Dravet Syndrome. Our mission is to bring hope to families living with Dravet Syndrome through support, education and medical research.
Contact Information
Conditions We Support
Central Nervous System
- Epilepsy
- Intellectual Disabilities
Supportive Care
Dravet Syndrome (Severe Myoclonic Epilepsy of Infancy)
Comorbidities
If you've been diagnosed with any of these conditions, we're here to help.
Link to this page
