Childhood Tumour Trust

The Childhood Tumour Trust is a charity dedicated to supporting children, young adults, and their families affected by childhood tumours, including NF1. They provide a range of support services such as counselling, workshops, educational resources, and advocacy activities. The organization also engages in research and awareness campaigns, collaborates with partners, and offers tailored resources to help families navigate diagnosis, treatment, and transition processes. They maintain a website with extensive information, support groups, and educational materials, and are involved in policy and clinical development activities related to childhood tumours.