CDH UK

CDH UK is a registered charity in England and Wales (no. 1106065) and Scotland (no. SC042410). It focuses on supporting research and providing support for individuals affected by Congenital Diaphragmatic Hernia (CDH). The organization offers patient support, advocacy, and research funding to improve outcomes and awareness of CDH. It engages in public education, supports families, and collaborates with medical professionals to advance treatment and understanding of CDH. CDH UK is a registered charity focused on Congenital Diaphragmatic Hernia (CDH). The organization provides comprehensive information about CDH, including diagnosis, what to expect during pregnancy and birth, post-natal care, surgical repair, possible outcomes, and emotional support. They offer various support services such as counselling, practical help (Home 2 Hospital, Help 4 Home, Help 4 Holidays), ongoing support, and resources for transition of care. CDH UK is actively involved in research, collaborating with researchers, PhD students, and healthcare professionals on research programmes and conducting in-house studies and surveys. They also publish research articles and provide educational materials like information booklets, magazines, and explainer graphics for patients, families, and carers. The charity is supported by patrons and a medical advisory panel, and engages in fundraising activities to support its mission.