BBS UK

Bardet-Biedl Syndrome UK is the only registered charity supporting people with Bardet-Biedl Syndrome, their families and carers in the UK. BBS UK is a user led organisation and is represented by adults with Bardet-Biedl Syndrome (BBS) and parents of children with BBS. Trustees willingly give up their time to provide support, raise awareness, raise funds and do as much as they can to keep BBS UK moving forward. The trustees are from varied backgrounds bringing different life experiences, understanding and knowledge to represent our members.