Batten Disease Family Association logo

Batten Disease Family Association

The BDFA’s mission is to enable everyone who is affected by Batten disease to live life to the full and secure the care and support they need until we find a cure. The BDFA offers informed guidance and supports families and professionals who work with them as well as actively increasing awareness of the disease and funding future research to identify potential therapies and ultimately a range of cures. The BDFA works across the rare disease sector to influence change in policy and processes as a collective voice.
About Us
Contact Information
Conditions We Support

Other Rare Disease

  • Batten Disease

Neurological Disorders

  • Neurodegenerative Disease

If you've been diagnosed with any of these conditions, we're here to help.

Link to this page

Link to this page on PatientGroups.ai