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Batten Disease Family Association

The BDFA’s mission is to enable everyone who is affected by Batten disease to live life to the full and secure the care and support they need until we find a cure. The BDFA offers informed guidance and supports families and professionals who work with them as well as actively increasing awareness of the disease and funding future research to identify potential therapies and ultimately a range of cures. The BDFA works across the rare disease sector to influence change in policy and processes as a collective voice.

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Have you been diagnosed with one of these conditions?

  • Genetic Disorders

    If you have been diagnosed with any of the above, get in touch with us.
    Or email Batten Disease Family Association






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