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Barth Syndrome Foundation

Working together we are making a difference in the lives of children and their families. One day there will be a cure; we hope you will help us make that day come sooner. Raising awareness among physicians, scientists, and the general public; Supporting relevant research through an international grant research program; Providing a caring and educational community for affected families; and Hosting a unique information resource.

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    Have you been diagnosed with one of these conditions?

    • Genetic Disorders
      • Barth Syndrome

    If you have been diagnosed with any of the above, get in touch with us.

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