Barth Syndrome Foundation
Working together we are making a difference in the lives of children and their families. One day there will be a cure; we hope you will help us make that day come sooner.
Raising awareness among physicians, scientists, and the general public;
Supporting relevant research through an international grant research program;
Providing a caring and educational community for affected families; and
Hosting a unique information resource.
About Us
Contact Information
- Phone:
- Email:
- Website: https://www.barthsyndrome.org/welcome.html
Our Location
Social Media
Have you been diagnosed with one of these conditions?
- Genetic Disorders
- Barth Syndrome
If you have been diagnosed with any of the above, get in touch with us.
Display "Featured on PatientGroups.ai" on your site
Help drive awareness to your website
Place this code anywhere on your site, it will link back here: