Logo of Action for XP

Action for XP

To provide a comprehensive support network for individuals and families affected by the ultra-rare disease, xeroderma pigmentosum (XP), providing equitable access to our charitable services throughout the UK. Providing both practical and emotional support to aid the improvement to the quality of life for individuals and families affected by XP, through all life stages of living with the disease. To further conditions for families in underserved regions internationally by engaging in proactive collaboration and knowledge sharing with our peers internationally. To further scientific understanding of xeroderma pigmentosum and work with the international scientific community to progress research and communicate that research to our community. To promote education and awareness both within the XP community and externally within the professional community and general population.

About Us

Contact Information

Social Media

    © 2024 Action for XP. All rights reserved.

    Have you been diagnosed with one of these conditions?

    • Genetic Disorders

      If you have been diagnosed with any of the above, get in touch with us.

      Display "Featured on PatientGroups.ai"

      on your site
      Featured on PatientGroups.ai
      Help drive awareness to your website
      Place this code anywhere on your site, it will link back here: