
Action for XP
To provide a comprehensive support network for individuals and families affected by the ultra-rare disease, xeroderma pigmentosum (XP), providing equitable access to our charitable services throughout the UK. Providing both practical and emotional support to aid the improvement to the quality of life for individuals and families affected by XP, through all life stages of living with the disease.
To further conditions for families in underserved regions internationally by engaging in proactive collaboration and knowledge sharing with our peers internationally. To further scientific understanding of xeroderma pigmentosum and work with the international scientific community to progress research and communicate that research to our community. To promote education and awareness both within the XP community and externally within the professional community and general population.
About Us
Contact Information
Conditions We Support
Central Nervous System
- Neurological Disorders
Dermatology
- Other Rare Dermatological Conditions
Genetic Disorders
- Other Rare Genetic Disorders
Oncology
- Skin Cancer
Psychological Impacts of Rare Diseases
Xeroderma Pigmentosum
- Others Rare Disease
If you've been diagnosed with any of these conditions, we're here to help.
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