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Action for XP

To provide a comprehensive support network for individuals and families affected by the ultra-rare disease, xeroderma pigmentosum (XP), providing equitable access to our charitable services throughout the UK. Providing both practical and emotional support to aid the improvement to the quality of life for individuals and families affected by XP, through all life stages of living with the disease. To further conditions for families in underserved regions internationally by engaging in proactive collaboration and knowledge sharing with our peers internationally. To further scientific understanding of xeroderma pigmentosum and work with the international scientific community to progress research and communicate that research to our community. To promote education and awareness both within the XP community and externally within the professional community and general population.
About Us
Contact Information
Conditions We Support

Central Nervous System

  • Neurological Disorders

Dermatology

  • Other Rare Dermatological Conditions

Genetic Disorders

  • Other Rare Genetic Disorders

Oncology

  • Skin Cancer

Psychological Impacts of Rare Diseases

    Xeroderma Pigmentosum

    • Others Rare Disease

    If you've been diagnosed with any of these conditions, we're here to help.

    Link to this page

    Link to this page on PatientGroups.ai