Asociación de Ayuda al Paciente con Inmunodeficiencia Primaria

AAPIDP - Asociación de Ayuda al Paciente con Inmunodeficiencia Primaria is a patient advocacy organization dedicated to supporting patients with primary immunodeficiency. They provide information, support, and advocacy for individuals affected by immunodeficiency conditions. The organization engages in activities such as patient education, support groups, and policy formulation to improve the quality of life for patients. They collaborate with medical centers and pharmaceutical partners to enhance patient care and access to treatments. Their services include informational resources, patient registries, and community engagement initiatives. They also participate in advocacy campaigns to raise awareness and influence health policies related to immunodeficiency.

The Asociación de Ayuda al Paciente con Inmunodeficiencia Primaria (AAIPIDP) is a non-profit organization founded on March 10, 2005. It is composed of parents of children with primary immunodeficiencies and adults with the same condition. Its main objectives include supporting patients and families to improve quality of life, creating networks of solidarity and communication among patients, families, and professionals, managing resources from donations and fundraising, advocating for legislation related to medication coverage, medical assistance, rehabilitation, and transportation, promoting scientific research in diagnosis and therapy, maintaining a patient database, disseminating updated scientific information, producing educational materials like brochures and videos, promoting cultural, social, and scientific activities, developing training programs for patients and professionals, forming support groups, and providing guidance for medication coverage and other health services.